Donation Decisions Laden With History Of Racism

Dorothy and Levi Reeves stand in their Oakland, Calif., home, holding their wedding photo from 57 years ago. Dorothy Reeves agreed to donate both of their brains after death to the University of California-Davis for research. (Anna Gorman/KHN)

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African-Americans suffer from Alzheimer’s disease and other forms of dementia at higher rates than whites, yet they are less likely to take part in research.

That has created a vexing challenge for scientists, who are trying to persuade more blacks to participate in studies — while they are alive and after they die. A critical part of their efforts is asking for brain donations.

Donating one’s brain is hard for many to fathom, but for African-Americans it is also laden with a long history of racism in health care, including callous and sometimes deadly experimentation.

Senior correspondent Anna Gorman talked to KPCC’s A Martinez on Take Two about dementia among African-Americans and how one couple in Northern California made the decision to donate their brains after death.

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