Listen: Why Don’t You Hear More About Sickle Cell Disease?

February 7, 2018

On the national affairs radio show "1A," Marqus Valentine describes how a mild stroke went misdiagnosed when he was in elementary school. Stroke is one of many serious effects of sickle cell disease. (Jenny Gold/KHN)

About Insight

Insight provides an in-depth look at health care issues in and affecting California.

Have a story suggestion? Let us know.

Jenny Gold, a Kaiser Health News senior correspondent, joined a panel of experts and patients to discuss sickle cell disease on “1A,” the national affairs radio show hosted by Joshua Johnson. The conversation on Feb. 5 tackled how discrimination may affect the level of attention sickle cell disease receives and why only two drugs exist to treat a problem that afflicts about 100,000 Americans.

Listen to the show at the1a.org.

Gold’s earlier reporting on sickle cell disease:

Sickle Cell Patients Suffer Discrimination, Poor Care — And Shorter Lives
Sickle Cell Patients, Families And Doctors Face A ‘Fight For Everything’

This story was produced by Kaiser Health News, an editorially independent program of the Kaiser Family Foundation.

Copy And Paste To Republish This Story

Listen: Why Don’t You Hear More About Sickle Cell Disease?

February 7, 2018

Article HTML

<h1>Listen: Why Don’t You Hear More About Sickle Cell Disease?</h1><p>Jenny Gold, a Kaiser Health News senior correspondent, joined a panel of experts and patients to discuss sickle cell disease on “1A,” the national affairs radio show hosted by Joshua Johnson. The conversation on Feb. 5 tackled how discrimination may affect the level of attention sickle cell disease receives and why only two drugs exist to treat a problem that afflicts about 100,000 Americans.</p>
<p>Listen to the show at <a href="https://the1a.org/shows/2018-02-05/why-you-dont-hear-much-about-sickle-cell-anymore">the1a.org.</a></p>
<p>Gold’s earlier reporting on sickle cell disease:</p>
<ul>
<li><a href="https://kffhealthnews.org/news/sickle-cell-patients-suffer-discrimination-poor-care-and-shorter-lives/">Sickle Cell Patients Suffer Discrimination, Poor Care — And Shorter Lives</a></li>
<li><a href="https://kffhealthnews.org/news/sickle-cell-patients-families-and-doctors-face-a-fight-for-everything/">Sickle Cell Patients, Families And Doctors Face A ‘Fight For Everything’</a></li>
</ul>

We encourage organizations to republish our content, free of charge. Here’s what we ask:

You must credit us as the original publisher, with a hyperlink to our californiahealthline.org site. If possible, please include the original author(s) and “California Healthline” in the byline. Please preserve the hyperlinks in the story.

Have questions? Let us know.

From The California Health Care Foundation

Medi-Cal Medi-Cal Facts and Figures – 2024 Edition

Medi-Cal, California’s Medicaid program, is the state’s health insurance program for Californians with low incomes, including children, people with disabilities, and seniors. Get the latest data on this program, which covers one in three Californians.

Health Policy Survey Health Disparities by Race and Ethnicity in California — 2024 Edition

Disparities among historically marginalized groups in California occur across many demographic categories. This Almanac provides data that show how people of color face barriers in accessing health care, often receive suboptimal treatment, and are most likely to experience poor outcomes in the health care system.

Health Policy Survey The 2024 CHCF California Health Policy Survey

Conducted in fall 2023, this survey collected Californian adults’ opinions and experiences on various health care topics, including mental health, medical debt, racial equity, and more.

Related Topics