Listen: Why Don’t You Hear More About Sickle Cell Disease?

February 7, 2018

On the national affairs radio show "1A," Marqus Valentine describes how a mild stroke went misdiagnosed when he was in elementary school. Stroke is one of many serious effects of sickle cell disease. (Jenny Gold/KHN)

About Insight

Insight provides an in-depth look at health care issues in and affecting California.

Have a story suggestion? Let us know.

Jenny Gold, a Kaiser Health News senior correspondent, joined a panel of experts and patients to discuss sickle cell disease on “1A,” the national affairs radio show hosted by Joshua Johnson. The conversation on Feb. 5 tackled how discrimination may affect the level of attention sickle cell disease receives and why only two drugs exist to treat a problem that afflicts about 100,000 Americans.

Listen to the show at the1a.org.

Gold’s earlier reporting on sickle cell disease:

Sickle Cell Patients Suffer Discrimination, Poor Care — And Shorter Lives
Sickle Cell Patients, Families And Doctors Face A ‘Fight For Everything’

This story was produced by Kaiser Health News, an editorially independent program of the Kaiser Family Foundation.

Copy And Paste To Republish This Story

Listen: Why Don’t You Hear More About Sickle Cell Disease?

February 7, 2018

Article HTML

<h1>Listen: Why Don’t You Hear More About Sickle Cell Disease?</h1><p>Jenny Gold, a Kaiser Health News senior correspondent, joined a panel of experts and patients to discuss sickle cell disease on “1A,” the national affairs radio show hosted by Joshua Johnson. The conversation on Feb. 5 tackled how discrimination may affect the level of attention sickle cell disease receives and why only two drugs exist to treat a problem that afflicts about 100,000 Americans.</p>
<p>Listen to the show at <a href="https://the1a.org/shows/2018-02-05/why-you-dont-hear-much-about-sickle-cell-anymore">the1a.org.</a></p>
<p>Gold’s earlier reporting on sickle cell disease:</p>
<ul>
<li><a href="https://kffhealthnews.org/news/sickle-cell-patients-suffer-discrimination-poor-care-and-shorter-lives/">Sickle Cell Patients Suffer Discrimination, Poor Care — And Shorter Lives</a></li>
<li><a href="https://kffhealthnews.org/news/sickle-cell-patients-families-and-doctors-face-a-fight-for-everything/">Sickle Cell Patients, Families And Doctors Face A ‘Fight For Everything’</a></li>
</ul>

We encourage organizations to republish our content, free of charge. Here’s what we ask:

You must credit us as the original publisher, with a hyperlink to our californiahealthline.org site. If possible, please include the original author(s) and “California Healthline” in the byline. Please preserve the hyperlinks in the story.

Have questions? Let us know.

From The California Health Care Foundation

CalAIM CalAIM in Focus

Explore CHCF’s collection of tools and resources aimed at helping organizations understand and implement CalAIM.

People Experiencing Homelessness Homelessness & Health Care Resource Center

Explore resources from CHCF that help health care, homeless services providers, government, and other systems work together so people are housed and healthy.

Health Policy Survey The 2024 CHCF California Health Policy Survey

Conducted in fall 2023, this survey collected Californian adults’ opinions and experiences on various health care topics, including mental health, medical debt, racial equity, and more.

Related Topics