Orphan Drug Tax Credit Is On Chopping Block, And California Families Are Worried
The credit gives drugmakers incentive to develop treatments for rare diseases that affect a small number of people. "This is not the place to cut," said Amy Granzow, whose daughter has a debilitating genetic disorder.
Los Angeles Times:
Families Of Patients Fear GOP Tax Plan Will Scuttle Drug Development For Rare Diseases
Of all the proposals in the GOP tax plan, none may be more important to families like Jay and Amy Granzow than an obscure provision on "orphan" drug research. The Granzows, who live in Manhattan Beach, fear that the final tax bill will end up killing or drastically cutting a three-decade-old tax credit for companies developing therapies for so-called orphan or rare diseases, such as cystic fibrosis, muscular dystrophy and Angelman syndrome. The last is a debilitating genetic disorder that afflicts the Granzows' nearly 3-year-old daughter, Cora. (Lee, 12/13)